A genetically aware service setting, educational activity, or research plan recognizes the contribution of genetic factors to health and disease, and their interaction with environmental factors. A genetically aware professional demonstrates basic knowledge of the role genomics plays in the development of diseases, identifies his/her own genomic expertise, and makes appropriate referrals to those with more expertise (Genomics workforce competencies). NCHPEG has developed a set of competencies for health professionals. Genetically aware health care builds upon the medical home concept and integrates the concepts of family-centered, culturally and linguistically competent care. These indicators dovetail with the consumer indicators of quality genetic services developed by the Genetic Alliance.
Score: Always (A) , Sometimes (S), Never (N) |
Your Score |
Checklist items |
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Recognizes that genetic information is part of all health information |
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Collaborates with families and communities in addressing genetic awareness |
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Encourages families to discuss and document family health history with consideration of confidentiality and the psychosocial impact at all life stages |
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Shares unbiased and complete information geared to the consumers’ needs and culture with families on an ongoing basis |
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Links families to consumer-oriented resources, community-based supports, and genetic research information |
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Recognizes and honors the contribution of genetic factors to diversity |
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Incorporates current genetic information in educational initiatives |
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Establishes a mechanism of referral for more in-depth genetic counseling and consultation |
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Recognizes the potential impact of differing genetic susceptibilities on research design, outcomes, and guideline development |
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Works to address issues of ethical, legal, and social concern, including privacy, access, cost, fairness, and discrimination |
Genomics workforce competencies
NCHPEG competencies for health professionals (www.nchpeg.org)
Genetic Alliance (www.geneticalliance.org)